1.27.11

Okay, again so sorry for the lack of posts lately.
What has happened since Saturday........
Matt and I did not do our room in on Sunday, because she was still having problems with Brady episodes. 6 in a 24 hour period. She has never had that many in such a short period of time. They didn't feel she was quite ready for a room in just yet. But, they decided to raise her bed back to the inclined position. They felt that her reflux was causing her to choke up, thus causing her heart rate to drop. Well, what do you know, it worked! But....because she had so many episodes, they wanted to rule out anything else that could be causing it, which could be some sort of infection, which led them to do all sorts of bloodwork. Everything looked normal, except for her CRP (number that shows inflammation or distress). It was slightly elevated, which they didn't think much of because the elevation was slight enough that it could have just meant that at the time the blood was taken, she was uncomfortable in some way. They took it again the next day and it increased a point, but the CBC was perfectly normal, so they really didn't think it was an infection. They were leaning towards an intolerance of the new formula they put her on (they just add a little to my milk to fortify it with extra vitamins). So, maybe her tummy just wasn't feeling quite right. The 3rd day, her CRP only went up .1, so pretty much the same as the day before. Sunday and Monday she seemed kinda lazy with her feedings, and wasn't quite finishing them, which was another indication that her body was in some sort of distress. They thought about maybe putting her back on oxygen to give her a little boost, but nothing ever came of that. At the end of all this, they decided that she may have had a little stomach bug, but nothing big enough to affect her CBC. Personally, I just think she was worn out, we really threw a lot of new stuff at her on Friday and then she had the 6 Bradys, which I imagine are pretty traumatic on her little body. But, since I'm missin that doctor's degree, what do I know? :) They will do another CRP on Friday in hopes that it has corrected itself, and whatever was wrong is no longer a problem.
On Tuesday, they decided to put her on Prilosec for her acid reflux (thank goodness), which seems to help her out a bit. You can tell she's still bothered with it some, but it is better. The doctor said she will grow out of this problem. Let's hope she grows out of it soon, it kills mama to see her tense up so bad when that acid starts coming back up. Since she's on the Prilosec, they have started trying to wean her off the inclined bed. So, they let her eat, then they wait a bit to lower the bed, letting her have a little time to digest before the lower it. She does not like it one bit when they lower it, but she's slowly getting better with it.
Today, they increased her feeds to 58 from 46, which shocked me a bit at first, but what they are going to do is let her eat what she wants, if she finishes all 58, great, if not, that's okay. Then they will wait for her to wake up to feed her within a 3-4 hour period, so if after 3 1/2 hours, she wakes up wanting to eat, feed her. This will be more of the schedule they want her on when she comes home, so they are getting her prepared.
Speaking of going home.......she has passed all the "tests" they give her in order for her to be able to come home. They only thing left is for us to do a room in, an MRI (which they do the day she goes home) and she has to get some pictures taken (for security purposes). They are looking at us doing our room in on Saturday and hopefully, home on Sunday or Monday. Nobody will say that officially just yet though. I think they feel bad that we got all excited last weekend and then were disappointed. It's alright though, we know she wasn't quite ready, and when she is, she will be home with us!! But it does seem like it's getting closer!